Sunday, February 15, 2009

A little bit about us...

In May 2003, Jonah was born with a rare and chronic liver disease called Biliary Atresia. A blockage in Jonah's main bile duct prevented bile from flowing from his liver, thus causing severe damage to this vital organ. Jaundice, cirrhosis, dangerously low blood counts and frequency of illness have made Jonah quite the fighter! A liver transplant is the only known "cure" for this disease. Two weeks ago, Jonah's dad and I decided to go ahead and place Jonah on the liver transplant list. I know he will be okay and that we are so lucky to live in Atlanta where Children's Healthcare performs these transplants with amazing success; but, as a mother, I feel terrified and scared to watch my sweet little boy have to go through something that nobody - certainly no innocent child - should ever have to endure. We feel extremely blessed to have been chosen for Bert's Big Adventure!! The support and kindness from so many people and businesses in Atlanta makes my heart melt and reinforces my belief in the goodness of people. We are truly grateful, so if you have had any part in our journey - from nominating us (Heather Peihl!) to praying for us to donating to the Adventure - let me just say a great big THANK YOU!!

4 comments:

  1. i'm officially a blogger now! i can't wait to hear about the trip everyday--i am so excited for you to have this adventure together!

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  2. Have a great trip Kerrie and Jonah. Give Buzz a high five for me and say hello to Donald Duck (he's my favorite). I am really happy for you guys!!!!

    Jeff

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  3. Kerrie, thanks so much for sharing this wonderful blog. Skip and I are in awe of you... from your optimism to your parenting to your balancing so many pieces. We hope Jonah has the trip of life time. You all certainly deserve it. Love, Vicki

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  4. We heard you on the radio this morning!! Jonah sounded so adorable I could just picture his huge grin. Have an amazing trip. We are so excited for you and can't wait to read and hear all about it!

    Rachel

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